Will's Background Story - Originally on Caringbridge March 28, 2006

Those of you that know William Christopher know that he is a bright loving child who has been healthy and happy over the last 6 years. The first part of March 2006 he was standing perfectly still talking to me in mid sentence and fell over, his eyes deviated to the right, and he stared right through me for abut a minute. When he finally "snapped out of it" he looked at me like I was crazy when I asked him if he was ok. He had no recollection of the event. He complained of a mild headache in his forhead for approx. an hour and then when asked about it said that it didn't hurt anymore. He had another episode much like this almost a week later. I scheduled an exam with our pediatrician and we lucked out and were able to see the pediatric neurologist that day also. The doctor feels that there is at least a 1 year history after our discussion. He has had "staring spells" at school and trouble concentrating, but his teacher felt that he was bored in class. He also has had a couple of episodes where he has had incontinance or vomitted and when asked about it said "I didn't know I needed to." He is an extremely bright child who is reading at a 3rd grade level and the teacher and councelors were chalking his spells up to him being a smart child who wasen't being challenged enough. The doctor feels like these were probably during seizures that we were not noticing.
Tests and more tests, questions and no answers, then answers, but not answers we wanted to hear. William has been diagnosed with a Venous Angioma in the left frontal region of his brain, Epilepsy, and Aytpical Autism. But nothing in the medical world is cut and dry, and there are typically more questions than answers. Please feel free to read through the journal entries and follow our roller coaster to the present, or join in now and follow along as we continue to love, learn, and live life.
I used to go home every day and hug my child and thank God that he was healthy and say a prayer for the unfortunate children and thier families that I care for at the hospital that had encountered medical difficulties. Now we are that child and that family.


(Lots has gone on with Will since this orignal post was wrote in 2006, if you would like to read more about his journey from then until the start of this blog, feel free to message me for information on his Caringbridge site.)